fight for Awareness.

#Truth4Neridronate #CRPSAwareness #CRPSWarriors

Each year during the CRPS Awareness month, we strive to raise the volume of communication in order to bring more awareness, knowledge and respect in the Community about this terrible condition. We know there are amazing people and groups out there such as RSDSA, burning nights, CRPS Truths and many others trying their best to make a difference; we want to help and be part of this as well.

So every year we will work on something special for the month of Awareness. We are working on crowd funding campaigns, charity projects, small film productions such as the video that brought you here, and also new therapy plans to help even those Warriors who are in the conditions since many years.

fight for Awareness.

#Truth4Neridronate #CRPSAwareness #CRPSWarriors

Each year during the CRPS Awareness month, we strive to raise the volume of communication in order to bring more awareness, knowledge and respect in the Community about this terrible condition. We know there are amazing people and groups out there such as RSDSA, burning nights, CRPS Truths and many others trying their best to make a difference; we want to help and be part of this as well.

So every year we will work on something special for the month of Awareness. We are working on crowd funding campaigns, charity projects, small film productions such as the video that brought you here, and also new therapy plans to help even those Warriors who are in the conditions since many years.

WHAT CAN PATIENTS DO?

Available Treatments

Worldwide

Here is a short list of the most largely diffused treatments for CRPS/RSD. This section has the purpose to inform Patients about the efficacy and reliability of the 4 largest groups of Medication used for the treatment of the condition, and are based on patients reported experience. For a full list of the available known treatments, please refer to our CRPS Blog.

Anhestetics

Anaesthetics provide temporary loss of sensation or awareness. In the treatment of RSD, anaesthetics may help with pain relief or decreased sensitisation to pain. One anaesthetic that has shown promise in RSD treatment is ketamine, a dissociative anaesthetic given intravenously in low doses for several days to marginally reduce or eliminate the chronic pain associated with the condition. Unfortunately, despite the heavy cost and the severe side effects associated with Ketamine, there are no official studies proving it’s efficacy for CRPS, and when achieved, positive effects disappear within a few months.
  • Cost 80% 80%
  • Side Effects 80% 80%
  • Short Term Efficacy 60% 60%
  • Long Term Efficacy 2% 2%

Opioids

Opioids such as codein and morphine can sometimes provide relief if the patient is experiencing severe pain. A long acting opioid is usually recommended for pain that is present throughout the day and night. Some common side effects of opiate painkillers are nausea and vomiting, constipation, dry mouth, tiredness, and some cognitive problems. Long term use combined with high doses of opioids has been associated with more serious health problems such as depression, absent periods in women, and erectile dysfunction in men. Efficacy of opioids will decrease over time due to inurement.

  • Cost 60% 60%
  • Side Effects 90% 90%
  • Short Term Efficacy 70% 70%
  • Long Term Efficacy 2% 2%

Anticonvulsants

Also known as antiepileptic/antiseizure drugs used in the treatment of epileptic seizures. Anticonvulsants have also been found to be useful in treating nerve pain, such as the burning, shooting pain experienced by individuals with RSD. Some common side effects of anticonvulsants that the patient may experience are drowsiness, dizziness, and severe weight gain. If the patient has certain medical conditions such as kidney stones or glaucoma, the physician should be notified as there are some types of anticonvulsants that are not recommended with those conditions.
  • Cost 40% 40%
  • Side Effects 50% 50%
  • Short Term Efficacy 30% 30%
  • Long Term Efficacy 20% 20%

Bisphosphonates

Neridronate can be administered intravenously or intramuscularly and so far, is the only RSD treatment offering long term benefits. It is most effective if administered as soon as the individual is diagnosed with CRPS. If the patient gets the Neridronate infusions as early as possible, they can expect a complete remission within a couple months, with no side effects nor complications ever registered. The Neridronate Treatment has been trialed and approved by AIFA, the Italian Drug Agency, and is the standard treatment in Italy.

  • Cost 60% 60%
  • Side Effects 1% 1%
  • Short Term Efficacy 60% 60%
  • Long Term Efficacy 80% 80%

How can we all help?

By now you probably know we are the people in Italy helping international patients to get the Neridronate Treatment which is not available yet in other Countries. We would like to fight for all the Warriors, though, not only those who are able to make the trip to Italy.

Please let us know how we can help more. We have made this film to help raise awareness; maybe with your help we can share it with as many people as we all can, to make the world more aware of this terrible condition.

We are willing to do more and keep trying harder to be of help. Can you help us in doing that? 

Share this video or send us a message to let us know how we can help more!

Who are we?

CRPS Treatment is an MTI Division, designed specifically to allow international patients to access the Neridronate Treatment in Italy until it becomes available worldwide. Because the timing is a key factor in the treatment of CRPS, we are here to allow a FAST LANE ACCESS to the therapy to people from around the world. We are always more than happy to cooperate with others CRPS Warrior’s communities and association. Everyone is free to share this film, and to get in touch with us to let us know how we can further help in raising awareness.

Where can I find more help?

If you can’t reach Italy to get Neridronate Treatment, or if you are more interested in trying other procedures or pain control therapies, we suggest checking out RSDSA Association, Burning Nights or Ferocious Fighters. We would be happy to help out other communities, so feel free to spread the word about our openness to helping Warriors worldwide.

FAST LANE

Live Chat Available

Talk to a CRPS Specialist today.

Having a live conversation is always the best choice. Our Patients Care Coordinators are completely bilingual and real CRPS Experts. During a live conversation you can ask questions that might arise from the dialogue itself, plus you’ll be able to have a debate on questions about Treatments, Success Rates, Prices and more.

Sandra

Patient Care Coordinator

Need to get in touch?

We will not use your phone number, name, surname or email contact for anything else than providing our service to you. Your data will not be forwarded to any third party company or person, and will be safely stored in our Head Quarters in Italy. Please read our Privacy Policy here.

Galleria Crispi 43, 36100 Vicenza - Italy

Call Us: +39 333 498 1157

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